Shuffler News
An insight into having Parkinsons
30 Days of Parkinson’s: My Father Was My Inspiration
Photos courtesy of Jill Steffey Day 14 of 30 This is Jill Steffey’s story: My father was my inspiration for becoming a Rock Steady Boxing coach for people with Parkinson’s. My father died in June 2020 at home because of Parkinson’s. He was the best man in the world!...
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Parkinsons
Parkinsons Posts from Round About
30 Days of Parkinson’s: My Father Was My Inspiration
Photos courtesy of Jill Steffey Day 14 of 30 This is Jill Steffey’s story: My father was my inspiration for becoming a Rock Steady Boxing coach for people with Parkinson’s. My father died in June 2020 at home because of Parkinson’s. He was the best man in the world!...
How Mutated Parkin Protein Causes Form of Early Onset Parkinson’s Detailed
The parkin protein, whose mutated form is linked to certain cases of early onset Parkinson’s disease, protects neurons by lowering levels of potentially harmful oxidants, and by removing them from areas where they might do harm, a study reported. Exactly how...
Enzyme Triggers Parkin Protein to Quickly Clear Damaged Mitochondria, Study Finds
An enzyme called AMPK drives the clearance of damaged mitochondria, each cell’s energy source, by rapidly promoting the initial activation of the parkin protein — whose deficiency is linked to early onset, hereditary Parkinson’s disease, a study shows. Parkin, which...
Davis Phinney Foundation
Davis Phinney Foundationhttps://davisphinneyfoundation.org Foundation for Parkinson’sTue, 13 Apr 2021 14:48:07 +0000en-US hourly 1 https://wordpress.org/?v=5.7https://davisphinneyfoundation.org/wp-content/uploads/2019/10/dpf_favicon-1.pngDavis Phinney Foundationhttps://davisphinneyfoundation.org 3232[WEBINAR RECORDING] HEALTH DISPARITIES AND PARKINSON’S: UNDERSTANDING THE ROLE OF TRUSThttps://davisphinneyfoundation.org/webinar-health-disparities-and-parkinsons-understanding-role-of-trust/ Tue, 13 Apr …
30 Days of Parkinson’s: Creating a Device to Lift Up Mealtimes
Photo courtesy of Anne Royer Day 13 of 30 This is Anne Royer’s story: Several years ago, we invited our family to a 90th birthday celebration for my mother-in-law, Mary. I had prepared her favorite meal, and I became concerned when she sat quietly and didn’t eat. When...
Study Shows Difficulty of Adapting Movements to Obstacles
People with Parkinson’s disease are less able to adapt their movements before crossing obstacles such as mounting a curb, according to a recent study. This type of adaptation, called locomotor synergy, may explain why crossing obstacles is more difficult for those...
MJFF Spotlights Online Fitness, Wellness Programs Tailored to Patients
The Michael J. Fox Foundation (MJFF) has a growing cache of community exercises, fitness activities, and mental strengthening skills that Parkinson’s (PD) patients can use any time and any place in response to the need for online programming due to the COVID-19...
Health Disparities and Parkinson’s: Understanding the Role of Trust
Thank a frontline worker with Parkinson’s Cards to Heroes
The Victory SUMMIT® Virtual Event – How to Live Well with Parkinson’s
We’re Here, Until Parkinson’s Isn’t
“You can help me or hinder me but you won’t stop me.” I read that quote somewhere this past week. You’ll have to forgive me, or should I say you’ll have to forgive my faulty Parkinson’s memory. It is the culprit that causes me to forget the things I sometimes would...
30 Days of Parkinson’s: Well-laid Plans for Retirement Disrupted
Photo courtesy of Diane Skylis Day 12 of 30 This is Diane Skylis’ story: Early on, I heard it said that Parkinson’s is an “expensive” disease. Frequent doctor bills are costly, so I thought any disease would be expensive. Why did that statement strike a nerve? Now,...
Molecular Link Found Between Parkinson’s and Skin Cancer
Researchers have found a molecular link between Parkinson’s disease and melanoma, a type of skin cancer, in the form of protein clumps. Their study results were presented at the spring meeting of the American Chemical Society this week. html, body { height:100%;...
Neurons, Not Nearby Cells, Decide Dopamine Levels, Study Reports
Dopamine-releasing cells in the brain, much like most other hormone-producing cells, have a self-regulating feedback mechanism that controls their activity, researchers have discovered. That is, healthy nerve cells themselves determine how much dopamine will be...
A Day in the Life of a Parkinson’s Ambassador: Gretchen White
30 Days of Parkinson’s: Boxing My Way Through Parkinson’s
Photo courtesy of Dave SteinerDay 11 of 30 This is Dave Steiner’s story: html, body { height:100%; width:100%; margin:0; padding:0; } .element-is-sticky { -moz-animation: cssAnimation 0s ease-in 2s forwards; /* Firefox */ -webkit-animation: cssAnimation 0s ease-in 2s...
2018 Davis Phinney Foundation-funded research study PUSHES THE PEDALS ON LIVING WELL WITH PARKINSON’S TODAY
30 Days of Parkinson’s: When Your Superhero Discovers Parkinson’s
Photo courtesy of Mary Beth Skylis Day 10 of 30 This is Mary Beth Skylis’ story: I was graduating from college when my dad got the diagnosis. He had Parkinson’s. The idea seemed foreign and impossible. This was the man who picked me up when I scraped my knees and came...
30 Days of Parkinson’s: How My Son and I Became Parkinson’s Ambassadors
Photo courtesy of Kathy Rupnow Day 9 of 30 This is Kathy Rupnow’s story: Seven years ago, my son was diagnosed with Young Onset Parkinson’s Disease at the age of 38. When faced with that kind of news, what do you do? html, body { height:100%; width:100%; margin:0;...
Health Canada Allows Start of DA01 Trial Testing Cell Therapy
BlueRock Therapeutics has received permission from Health Canada to start a Phase 1 clinical trial evaluating DA01, an investigational cell therapy that aims to restore neurons lost to Parkinson’s disease. This clearance comes three months after the U.S. Food and Drug...
Phase 2 Trial of Cognitive Treatment NYX-458 Resumes
Aptinyx‘s Phase 2 clinical trial evaluating its investigational oral compound NYX-458 for the treatment of cognitive impairment and mild dementia associated with Parkinson’s disease is resuming patient screening after a temporary pause due to the COVID-19...
Spring Brings Me Hope as I Grieve My Losses From Parkinson’s
I miss the person I was as I dance around the person I am, and I try to figure out who I am becoming. Mine is an ambiguous loss. A loss that’s hard to understand with Parkinson’s disease. It is hard to be on this side of my life. I often feel like I am fading away...
Menopause Highlights the Different Ways Parkinson’s Affects Women
I initially started this column by writing about my menopause journey and trying to add some levity to it. This was after my friends jokingly “welcomed me to the party.” However, as I continued writing and researching, I realized there may be more to the menopause...
30 Days of Parkinson’s: Living with Perspective and Hope
Photo courtesy of Tamara Sutherland Day 8 of 30 This is Tamara Sutherland’s story: Our Parkinson’s story begins three and a half years after my husband, Marcus, and I were married, when he was 52. We thought his fatigue and mild clumsiness were due to working long...
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