Disability Support Workers (DSWs) are risking illness with minimal training during the coronavirus (COVID-19) crisis, a new survey has found.
Organisation/s: The University of Melbourne
Funder: Disability Support Workers: the forgotten workforce in COVID-19 was funded by the Melbourne Disability Institute, the University of Melbourne.
From: The University of Melbourne
Led by researchers at the University of Melbourne Disability and Health Unit and UNSW Canberra, the national survey also found these workers face financial hardship.
Of those who took time off due to illness, only 47 per cent were paid, reflecting the workforce’s casual nature. Thirty-four per cent faced financial difficulties like not being able to pay an electricity, gas or phone bill on time or being unable to pay their rent.
The researchers conducted the online survey of 357 Australian DSWs between late May and June 2020 about their experiences working during the pandemic.
Respondents ranged from 18-75 and 83 per cent were women. Like health and aged-care workers, DSWs can’t physically distance while working. They worked with an average six people with disability in the week before the survey. It also found:
- 53 per cent provided support with tasks that require close personal contact like feeding and brushing teeth
- 23 per cent had not received any COVID-19 infection control training
- Of the 77 per cent who did receive training, 48 per cent would like more
- 64 per cent had received or purchased some form of personal protection equipment (PPE). More than half (54 per cent) received gloves and 37 per cent masks from their employer. Notably, 38 per cent purchased their own masks
- 23 per cent had been tested for COVID-19 infection and 11 per cent wanted to be tested
- 14 per cent worked for more than one provider and six per cent worked in both the aged-care and disability sector
- 30 per cent worked in two or more settings, and 14 per cent worked in three or more settings
- 27 per cent cancelled shifts because they were worried about COVID-19 infection and 35 per cent had shifts cancelled by clients or employers due to fear of COVID-19
- 16 per cent reported high psychological distress levels consistent with serious probable mental illness; 22 per cent of workers experiencing financial stress had probable mental illness, compared to 14 per cent among those who did not report financial problems.
The researchers have made 11 recommendations (see below), including updating PPE guidelines, proactively reaching out to DSWs so they can receive the required training, ensuring they have access to pandemic leave and making sure expert health staff can provide back-up if needed.
The survey reflects the situation for workers when PPE was just being made available to workers after a marked shortage in March and April. With cases now rising in Victoria, on 17 July PPE became compulsory for DSWs in hot spot areas.
Lead researcher Professor Anne Kavanagh, who is Chair in Disability and Health and Academic Director of the University’s Melbourne Disability Institute, said the situation in Victoria was serious with COVID-19 cases recorded among people with disability in a group home and among support workers.
“This presents very real difficulties for workers with little or no training who now have to implement meticulous infection control procedures and use full PPE,” Professor Kavanagh said. “Some people with disability, particularly those with psychosocial, autism and/or intellectual disabilities, may find it very challenging to self-isolate or quarantine and may have difficulties with personal hygiene and physical distancing.
“Further, workers are themselves having to self-isolate or quarantine because they are infected or are a close contact of a case. This means that familiar workers are no longer available to support infected clients at a very stressful time.”
Quote from Disability Support Worker Kristy.
“My work has completely changed since COVID. The day service I work in has closed. I am now working across multiple group homes. Every day we get new advice on what to do and that is stressful. I am worried about protecting the people I work with as many have health problems and if they got COVID they would really be at risk of dying from it.
“In one home I worked residents were isolated after testing and many workers didn’t want to work because they were worried about their own or a family members health. Imagine what could happen if one of the residents had tested positive. If regular workers aren’t working, then that will be really difficult for many people with disability who are already stressed by COVID and the restrictions on what they do.
“I feel like the government has forgotten about people with disability and support workers. All the attention is on aged-care but disability services have the same risks, even worse perhaps because so many of the people have other health problems.”
- That governments update their guidelines regarding PPE use among DSWs, particularly for DSWs working in areas where community transmission is high.
- That governments proactively reach out to DSWs so that they receive the training they require. Resources on government websites needs to be more actively promoted. DSWs need clear information and detailed training about whether, when, and how PPE is used, including simulated training and onsite training with specialised infection control nurses, not just information online before being expected to work in high risk situations, such as a COVID-positive environment.
- In areas where community transmission is high all DSWs should have access to appropriate PPE (minimum of masks) without cost to them. Governments need to make urgent decisions about access to PPE for workers elsewhere in Australia.
- That governments make clear that DSWs are a priority group for testing along with healthcare and aged-care workers.
- Paid pandemic leave is available to all DSWs who do not have access to paid sick leave and need to self-isolate or quarantine while waiting for a test result; or because they have COVID-19; or are a contact of a known case.
- Governments and providers should ensure DSWs minimise the total number of people they support and the number of settings they provide support in, to reduce risk of transmission among multiple people with disabilities and DSWs, as has been witnessed in aged-care facilities. Particular attention should be paid to identifying workers who work for more than one provider and/or work across multiple group settings.
- Government needs to prioritise ensuring financial security of this essential workforce through extension of JobKeeper or similar supports and paid pandemic leave. Without this, it may not be financially viable for many DSWs to remain in their current jobs, resulting in challenges creating surge capacity in the workforce and an impediment to long term growth.
- Governments and service providers need to provide mental health support to DSWs. Comprehensive infection control training and access to PPE, where required, would reduce the psychological stress many workers are experiencing.
- That governments identify, and have on standby, a skilled health care workforce that can be rapidly deployed to work alongside DSWs or replace them supporting clients infected with COVID-19, as has been deployed in aged-care.
- A surge workforce of DSWs fully trained in infection control is created to provide back-up where needed (potentially from later year medical and nursing students).
- That governments and service providers consider options to temporarily rehouse residents in group homes where infections have occurred to separate infected and non-infected residents.