[Video] YOPD Council: Death and Dying

23 February 2021

Death is a universal part of life. But when faced with a Parkinson’s diagnosis, this topic may have an entirely new meaning.

In this webinar, our YOPD Council leaders discussed:

  • Parkinson’s and its effect on their perspectives of death
  • Strategies for managing feelings of loss
  • How to effectively prepare for end-of-life and live well in the moment NOW
  • How to have conversations with your loved ones about death
  • How to re-channel your energies on things that bring you hope

You can watch the video below.

To download the audio, click here.

To download the transcript, click here.

Show Notes

  • It is important to talk to your loved ones about your end-of-life wishes early. By having this conversation, you are not “giving up” but rather, preparing early so that you can live life to its fullest
  • End-of-life planning includes completing an advanced directive (a legal document that allows you to make your end-of-life wishes known in the event that you are unable to communicate)
  • Our panelists agree that even though their Parkinson’s diagnosis brought its own grief regarding their end-of-life, it also “lifted the veil” and allowed them to accept the future while living fully in the present
  • Palliative care focuses on how to help you live well with your diagnosis. A palliative care physician may ask you about your values, ethics, and what’s important to you in order to live well throughout the progression of your diagnosis
  • Death is an inevitable part of life that everyone will experience. Events such as “death cafes” seek to increase the awareness of death to help people make the most of their finite lives

resources and topics discussed 

Care Planning For A Parent Living With Parkinson’s

“Being Mortal” by Atul Gawande

[Webinar Recording] Holistic And Supportive Care For People Living With Parkinson’s

The Conversation Project (A resource to help start the conversation about end-of-life planning)

Donating Your Brain To Science

WANT more advice from our yopd council?

You can register for the entire YOPD Council series here, as well as catch up on recent conversations. We meet on the third Thursday of every month to discuss the unique challenges of living with YOPD.

Join us for our new YOPD Women Series

During our monthly YOPD Women sessions, we’ll address the many issues unique women living with YOPD with the help of doctors, specialists, and our YOPD Women Council leaders. Register today and join us for these lively, interactive, and truth-telling monthly sessions.


Posted at Davis Phinney


Davis Phinney - Parkinsons



Submit a Comment

Parkinsons, Odd behaviour and Medications

Parkinsons, Odd behaviour and Medications

Do you have a friend or loved one with Parkinsons ? You reckon that would be bad enough ? Is their behaviour a bit (or a lot or even dangerously) out of character? It may be the drugs they are taking and not their real self or the disease!Please read ALL of this post...

Introduction and Excuse me!

Introduction and Excuse me!

Pardon me, while I get this social media enterprise working. It has taken me 12 months to get this far with this editorial labyrinth. My former pre Parkinson’s self would have had this whipped up in a week or two, reality changes ability, however I won’t let it kill...

They Call me Shuffles

They Call me Shuffles

    A diagnosis with Parkinson's changes a lot of things: Motor function, non-motor functions, but maybe even more powerful is the changes in social interactions. I personally don't mind being called "Shuffles" now, I did at first (8 or so years ago I think), I...