Notice: Undefined property: acf_plugin_phone::$settings in /home/shufflernews/public_html/wp-content/plugins/divi-machine/includes/acf_fields/acf-phone.php on line 274

Notice: Trying to access array offset on value of type bool in /home/shufflernews/public_html/wp-content/plugins/divi-machine/includes/loader.php on line 11

Notice: Undefined variable: et_accent_color in /home/shufflernews/public_html/wp-content/plugins/divi-machine/includes/modules/divi-ajax-filter/includes/modules/FilterPosts/FilterPosts.php on line 486
30 Days of Parkinson’s: My Parkinson’s Journey - Shuffler News

30 Days of Parkinson’s: My Parkinson’s Journey

April 6, 2021

Photo courtesy of Marcia Drost

Day 7 of 30

This is Marcia Drost’s story:

My name is Marcia Drost, and I have Parkinson’s. I am a wife, mother, grandmother, and educator. Once while teaching a summer school class, I introduced the syllabus, and then the room seem to swim before my eyes. I told the class I needed a break and then passed out cold on the floor. EMTs were called and I was tested. They found nothing. 

html, body {
height:100%;
width:100%;
margin:0;
padding:0;
}
.element-is-sticky {
-moz-animation: cssAnimation 0s ease-in 2s forwards;
/* Firefox */
-webkit-animation: cssAnimation 0s ease-in 2s forwards;
/* Safari and Chrome */
-o-animation: cssAnimation 0s ease-in 2s forwards;
/* Opera */
animation: cssAnimation 0s ease-in 2s forwards;
-webkit-animation-fill-mode: forwards;
animation-fill-mode: forwards;
}
@keyframes cssAnimation {
to {
width:0;
height:0;
overflow:hidden;
}
}
@-webkit-keyframes cssAnimation {
to {
width:0;
height:0;
visibility:hidden;
}
}

It was suggested I see my primary care physician, who ran three tests and referred me to a local neurologist. During my visit, I was informed I had Parkinson’s. Waiting in his lobby for 20 minutes before being seen, I had my first introduction to what advanced Parkinson’s looked like, and it was scary. I immediately started looking for information and found our local Parkinson’s support group. 

I was put on Sinemet within months and found it very helpful, although over time my dosage increased to 10 pills a day. At that time DBS, or deep brain stimulation, was recommended. I had the implant in 2015, and a battery replacement in 2019. What a difference it made! My shakiness is totally under control and regular visits to my neurologist allow them to tweak the stimulator to optimum efficiency. 

<!–

–>

#post-32585{padding:0;}

html, body {
height:100%;
width:100%;
margin:0;
padding:0;
}
.element-is-sticky {
-moz-animation: cssAnimation 0s ease-in 3s forwards;
/* Firefox */
-webkit-animation: cssAnimation 0s ease-in 3s forwards;
/* Safari and Chrome */
-o-animation: cssAnimation 0s ease-in 3s forwards;
/* Opera */
animation: cssAnimation 0s ease-in 3s forwards;
-webkit-animation-fill-mode: forwards;
animation-fill-mode: forwards;
}
@keyframes cssAnimation {
to {
width:0;
height:0;
overflow:hidden;
}
}
@-webkit-keyframes cssAnimation {
to {
width:0;
height:0;
visibility:hidden;
}
}

During a visit in December 2017, I told the doc my symptoms were progressing quite rapidly. They checked my DBS unit. It had been turned off for months. It was then I found out about monitors at various stores that could catch “thieves” but they could also inadvertently turn off my DBS unit.       

Because of swallowing problems, I have had an esophageal dilation done multiple times. Early after my diagnosis, the Big and Loud Program was recommended and I went through that, which my husband described as restoring my teacher’s voice. Since then, in different physical therapy sessions, I have had modified lessons in Big and Loud concerning movement, whereas the first time it was concentrated on voice projection. 

#post-32585{padding:0;}

To manage my symptoms, I have resorted to heavy dependence on the following: assistive technology, my service dog, mind games, exercise, and a great physical therapist!  

Keep a positive attitude, and remember that laughter is always the best medicine. 

Parkinson’s News Today’s 30 Days of Parkinson’s campaign will publish one story per day for Parkinson’s Awareness Month in April. Follow us on Facebook and Instagram for more stories like this, using the hashtag #30DaysofPAR, or go here to see the full series. 

×

.uab-field i, .uab-num-post-count {display:none;}
.uab-template-2 .uab-contact-form-submit input[type=submit] {
padding: 17px 25px 30px;
margin-top: 2em;
}
.uab-template-2 .uab-tabs li.uab-current {
background: #4C9FFD;}

.uab-template-2 .uab-tabs a, .uab-template-2 .uab-tabs li {color: #4C9FFD;}

.uab-template-2 .uab-tabs li:after {
border-color: #4C9FFD transparent transparent transparent;
}

.pf-button.pf-button-excerpt { display: none; }

https://parkinsonsnewstoday.com/2021/04/06/30-days-of-parkinsons-my-parkinsons-journey/

Parkinsons News Today

Categories

0 Comments

Submit a Comment

Parkinsons, Odd behaviour and Medications

Parkinsons, Odd behaviour and Medications

Do you have a friend or loved one with Parkinsons ? You reckon that would be bad enough ? Is their behaviour a bit (or a lot or even dangerously) out of character? It may be the drugs they are taking and not their real self or the disease!Please read ALL of this post...

Introduction and Excuse me!

Introduction and Excuse me!

Pardon me, while I get this social media enterprise working. It has taken me 12 months to get this far with this editorial labyrinth. My former pre Parkinson’s self would have had this whipped up in a week or two, reality changes ability, however I won’t let it kill...

They Call me Shuffles

They Call me Shuffles

    A diagnosis with Parkinson's changes a lot of things: Motor function, non-motor functions, but maybe even more powerful is the changes in social interactions. I personally don't mind being called "Shuffles" now, I did at first (8 or so years ago I think), I...

30 Days of Parkinson’s: My Father Was My Inspiration

30 Days of Parkinson’s: My Father Was My Inspiration

Photos courtesy of Jill Steffey Day 14 of 30 This is Jill Steffey’s story: My father was my inspiration for becoming a Rock Steady Boxing coach for people with Parkinson’s. My father died in June 2020 at home because of Parkinson’s. He was the best man in the world!...

Share This