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Parkinsons and Dopamine Agonists, a story !

New Parkinsons Post Library
New ! Over the last 2 years, we have been saving every post we could find on Parkinsons, from every source we could find. We now have a searchable index to peruse through, on hopefully every topic in relation to Parkinsons, posted in the last 2 years… Enjoy !
(We do not claim copyright, and acknowledge the original authors with a link back to their posting site)

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The words of someone who has been to hell and back and still climbing out of it.
“Agonists are like your best friend acting nice, but in the bigger picture they have an ulterior motive far more sinister than any benefit that the friendship could ever provide.
For most it works, but my experience was stomach churningly horrendous, with life long repercussions of the highest order, loss of business, reputation, family houses, economic and social supports.
Structured social and medical supports, as well as patient suitability given patient personality and lifestyle, are required that extend way beyond what the medical profession currently offers .
These supports need to look for and continually monitor for the hidden signals, behaviour changes, reclusiveness, adverse risk taking, clouded judgement, as the participant can very easily deliberately hide the obvious signs of compulsive behaviour, which may seem trivial to those looking in, but will rock the foundations for the person who sought the benefit, ripping their insides with decay and leaving a shell of a human with nothing left inside.”
There is a moral duty of care that isn’t being acknowledged, and those affected are too proud to publicly admit that they fell prey to the fiery forks of the devil disguised.
This could never happen to me, I won’t be judged by my friends so I’ll keep it to myself”
Featured Posts on Parkinsons
I’m terribly sorry, I do not mean to shock anyone, but right now, I see a person who is heading the same way I did, and I am beside myelf that I am unable to help, I am doing my best to be subtle, I am so so worried nothing is being done to help !
If you think you know someone, who may be affected, please read on: Further links below.
Please read this post, originally posted on the Parkinsons UK Website
In the mean time, I am working to raise awareness to perhaps better profile potential candidates and better monitor those that are affected: In paticular, those that are single, autonomous, and answer to no one to themselves (like me), in regards to finances and life journey critical decisions.
What the Dickens! I am back…..
But for how long you are thinking?! Do enjoy it for what it is.
It is, what it is.
People said, “It’s just around the corner”, “it’s in the labs now, in 5 years it will be on the market”.
Are drug companies interested in a cure, it seems too much money is made from the 10 million people worldwide living with Parkinson’s (PLwP).
It is often said to me that the medication is so much better now. This is only uttered by people who have no idea. The Gold Standard is a 50 year old drug, the more recent medications, agonists, were and still are akin to poison for some people, leading to impulsive behaviour that has wrecked many lives due to gambling, shopping, gaming, sex.
“Agonists are like your best friend acting nice, but in the bigger picture they have an ulterior motive far more sinister than any benefit that the friendship could ever provide” – the words of someone who has been to hell and back and still climbing out of it.
“For some it works but in my opinion, structured social supports are required that extend way beyond what the medical profession can offer to monitor the participant. These supports need to look for the hidden signals as the participant can very easily deliberately hide the obvious signs. And there is a moral duty of care that isn’t being acknowledged, and those affected are too proud to publicly admit that they fell prey to the fiery forks of the devil disguised. This could never happen to me, I won’t be judged by my friends so I’ll keep it to myself”
The worldwide shortage of all forms of Sinemet has been going on for some time, it will continue to be in short supply until further notice. Sinemet is a widely used Parkinson’s medication, marketed by Merck, Sharp & Dohme (Australia) who are keeping doctors informed. The shortage is due to a problem at the manufacturer’s level. The patients prescribed this medication are advised to find a substitute.
This will not be explained away with a nice ending.
It is what it is.
My current work in progress, The Cornflower Quilt it is made in the English Paper Piecing method and designed by Jodi Godfrey. A long term project perfect for the Covid19 lockdown, getting close to one quarter way there.
DJ Madonna:
https://djmadonna1.blogspot.com/
DJ Madonna Direct Feed What the Dickens! I am back.....
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